Help Save Lily – 80% Skin Loss from Rare Disease
80% of Lily’s skin blisters from touch. She’s in constant pain. Your help can save her.
About Lily
Lily is a beautiful, bright, and incredibly brave little girl. She was born with a rare and painful genetic skin condition called Epidermolysis Bullosa (EB), which causes her skin to blister and tear with the slightest touch.
Simple joys like holding hands, wearing clothes, or receiving a hug are dangerous for Lily — because 80% of her skin is so fragile, it’s like living without a protective layer.
Despite living in constant pain, Lily smiles with a strength beyond her years. She dreams, she hopes, and she fights every single day — and now she needs our help to keep fighting.
Lily's Story
Lily’s Story – A Life of Courage Through Constant Pain
Lily is not just any little girl—she’s a true warrior. Born with a rare and life-threatening genetic condition called Epidermolysis Bullosa (EB), Lily’s skin is as fragile as a butterfly’s wing. Even the gentlest touch can cause it to blister, tear, or peel away.
This cruel disease affects 80% of her body, making everyday life incredibly painful. Things most children take for granted—wearing clothes, playing, or getting a warm hug—can be dangerous for Lily. Her wounds are so severe that her bandages often fuse to her skin. When it’s time to change them, the process rips off her healing tissue, causing extreme pain, bleeding, and emotional trauma. These changes happen regularly and leave her so weak that she often requires blood transfusions.
Lily’s mother cares for her around the clock with endless love and strength, but the physical, emotional, and financial toll is overwhelming. Specialized bandages, medical supplies, hospital trips, and transfusions are all essential—but incredibly costly.
Despite her pain, Lily continues to smile. Her courage is nothing short of inspiring. She doesn’t give up—and neither will we.
This is not just a plea for help—it’s an invitation to be part of Lily’s journey. Your support goes directly to her essential care. Every donation helps ease her pain, support her family, and give her a chance at a safer, more comfortable life.
Please give what you can. Lily’s fight is real—and so is her need.
Let’s stand beside her.